Care versus companionship in the context of intellectual and developmental disabilities (IDD).

Research line 3

Care versus companionship in the context of intellectual and developmental disabilities (IDD).

We understand both the positive aspects, the tensions and dilemmas faced by families and other stakeholders who accompany children, adolescents, and adults with IDD in their daily lives, seeking to promote the design of training programs that allow for the full exercise of rights and the effective participation in society of this group of people and their families.

Objectives

a. Comprehend the main needs and positive aspects perceived by carers and/or companions of people with IDD, considering personal and sociocultural variables.

b. Characterize, from the voice of those who accompany people with IDD: their attitudes towards the condition, towards people with IDD, and towards state agencies and current public policies.

c. Design, test and disseminate a training program that allows a better accompaniment to people with IDD, incorporating the human rights approach in this matter.

Head Researchers

Marcela Tenorio Delgado
PhD in Psychology from the Pontificia Universidad Católica de Chile. Professor at the Universidad de los Andes (Chile).

Vanessa Vega Córdova
PhD in Research on Disability from the University of Salamanca, Spain. Adjunct professor at the School of Pedagogy of the Pontificia Universidad Católica de Valparaíso.

Paulina Arango Uribe
PhD in Psychology at Pontificia Universidad Católica de Chile. Professor at the School of Psychology, Universidad de los Andes.

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Students

Constanza López

Journalist and PhD student of Interdisciplinary Studies on Thought, Culture and Society at Universidad de Valparaíso.

Félix González

Sociologist with an Master in Education. PhD student of Psychology at Pontificia Universidad Católica de Valparaíso.

Eduardo Marchant

Lawyer and PhD student of Constitutionalism and Law at Universidad Austral de Chile.

Katherine Exss

Graphic Designer, Master of Arts in Information Design from the University of Reading, UK. Professor at the School of Architecture and Design of the Pontificia Universidad Católica de Valparaíso. PhD student in Architecture and Urbanism at the Bío Bío University.

Ketty Cazorla

Social worker, Master of Health, doctoral student in Psychology at the Pontifical Catholic University of Valparaíso, and academic at the School of Social Work at the University of Valparaíso.

Carlos Ortega

Psychology student at Universidad de los Andes.

Camila Hernández

Psychology student at Universidad de los Andes.

Simón Guajardo

Psychology student at Universidad de los Andes.

Lina González

Psychiatrist and Master in Clinical Epidemiology. Health and Well-being Leader at the Saldarriaga Concha Foundation and Professor of Psychiatry at Pontificia Universidad Javeriana (PUJ). Doctoral student in Clinical Epidemiology at PUJ, Colombia.

Jacinta Vélez

Sociologist, student of the Master’s in Applied Social Research Methods at the Universidad Autónoma de Barcelona.

Alma Canaán

Bachelor in Psychology, Master in Child and Adolescent Psychology, and Master in Speech and Language Pathology. Currently pursuing a Master’s in Pediatric Neuropsychology at Universidad de los Andes.

Cristián Álvarez

Psychologist and Advisor in the Division of Victim and Witness Care at the National Prosecutor’s Office. Master’s in Clinical Psychology. Currently a doctoral student in Psychology at Universidad de Chile.

Ignacio Verón

Psychologist and student in the Master’s program in Relational Clinical Psychology with Children and Adolescents at Universidad Alberto Hurtado.

Ana Mendoza

Psychologist, Master’s in Cognitive Neuroscience and Neuropsychology, and Master’s in Educational Guidance. Doctoral student in Psychology at Universidad Autónoma de Madrid.

Paulina Gómez

Speech Therapist, Executive Director at SENDAS, Center for Support to People with Down Syndrome. Student in the Master’s in Pediatric Neuropsychology at Universidad de los Andes.

Agustina de la Barra

Student of Psychology at Universidad de los Andes.

Sara Guerra

Student of Psychology at Universidad de los Andes.